JRSM > Volume 95, Number 5 > Pp. 242-246

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Dementia and ethics: the views of informal carers

Julian C Hughes PhD   Tony Hope PhD  ¹ Steve Reader RMN  ²   Dee Rice FRCPsych  ³

Old Age Psychiatry, Newcastle General Hospital and The Oxford Centre for Ethics and Communication in Health Care Practice (ETHOX), University of Oxford, Cholsey, UK
¹ ETHOX, University of Oxford, Cholsey, UK
² Thatcham Mental Health Project, Cholsey, UK
³ Old Age Psychiatry, Fair Mile Hospital, Cholsey, UK

Correspondence to: Dr Julian C Hughes, Gibside Unit, Centre for the Health of the Elderly, Newcastle General Hospital, Westgate Road, Newcastle upon Tyne NE4 6BE, UK

There has been little work on the ethical issues facing non-professionals who care for relatives or others with dementia. A qualitative pilot study was conducted in ten such individuals, eight of them women, caring for persons drawn mainly from one general practice. The interviews indicated that many of the dilemmas faced by carers are ethical and that the issues differ from those faced by professionals. Ethical issues are sometimes the most troublesome matter for carers. Unlike issues for professionals, they arise from a personal context and are shaped by long-term relationships.

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